{"id":5494,"date":"2017-04-17T15:47:17","date_gmt":"2017-04-17T18:47:17","guid":{"rendered":"https:\/\/prodoctor.net\/blog\/?p=5494"},"modified":"2021-06-25T14:38:37","modified_gmt":"2021-06-25T17:38:37","slug":"dia-internacional-da-hemofilia","status":"publish","type":"post","link":"https:\/\/prodoctor.net\/blog\/dia-internacional-da-hemofilia\/","title":{"rendered":"Dia Internacional da Hemofilia"},"content":{"rendered":"

Comemora-se hoje, 17 de abril<\/strong>, o ”Dia Internacional da Hemofilia<\/strong>”, data institu\u00edda para celebrar o nascimento de Frank Schnabel, fundador da Federa\u00e7\u00e3o Mundial de Hemofilia. Portador de hemofilia A grave, ele lutou incansavelmente em prol da melhoria da qualidade de vida dos acometidos pela doen\u00e7a<\/strong>. A data representa para a comunidade de hemof\u00edlicos e seus familiares um marco na busca pela melhoria da qualidade de vida de todos os hemof\u00edlicos do planeta.<\/p>\n

Confira a seguir alguns aplicativos<\/strong> destinados a ajudar hemof\u00edlicos<\/strong> a manter o controle do tratamento<\/strong> e tamb\u00e9m auxiliar os m\u00e9dicos especialistas<\/strong> no monitoramento de seus pacientes.<\/p>\n

Aplicativos para pacientes com Hemofilia<\/h3>\n

1 – Hemofilia<\/h4>\n

Traz refer\u00eancias importantes, <\/strong>informa\u00e7\u00f5es \u00fateis e resumidas a respeito da hemofilia tipos A e B, leve, moderada e grave, assim como os tratamentos profil\u00e1ticos, imunotoler\u00e2ncia, tratamento sob demanda, tratamentos ortop\u00e9dicos e a Doen\u00e7a de Von Willebrand, al\u00e9m de in\u00fameros assuntos correlatos.<\/p>\n

Com o Fator Calc \u00e9 poss\u00edvel calcular, atrav\u00e9s do peso do hemof\u00edlico e do aumento desejado de coagula\u00e7\u00e3o, a quantidade exata de fator a ser administrada por infus\u00e3o.\u00c9 ideal para ser utilizado pelos profissionais da \u00e1rea<\/strong>, uma vez que agiliza o processo de indica\u00e7\u00e3o da medica\u00e7\u00e3o.<\/p>\n

Bastante pr\u00e1tica, uma tabela permite a verifica\u00e7\u00e3o da dosagem recomendada para cada tipo de sangramento<\/strong>.<\/p>\n

Com rela\u00e7\u00e3o \u00e0s infus\u00f5es, o app traz um cadastro pr\u00e1tico para o controle<\/strong>, sendo que ap\u00f3s uma infus\u00e3o realizada o aplicativo notificar\u00e1 o hemof\u00edlico<\/strong> dentro de 24 a 48 horas lembrando da necessidade de nova infus\u00e3o.<\/p>\n

Aplicativo gratuito, dispon\u00edvel para Android<\/a>.<\/p>\n

2 – Fator Track<\/h4>\n

Este aplicativo tem como objetivo auxiliar o paciente hemof\u00edlico<\/strong> para ter um melhor controle da enfermidade<\/strong>. Trata-se de um di\u00e1rio<\/strong> simples, mas abrangente e personaliz\u00e1vel, para as pessoas com hemofilia A<\/strong>, proporcionando um hist\u00f3rico eficiente das infus\u00f5es<\/strong>.<\/p>\n

O aplicativo tamb\u00e9m registra altera\u00e7\u00f5es nas dosagens e controle das aplica\u00e7\u00f5es<\/strong>, al\u00e9m de permitir a transfer\u00eancia das informa\u00e7\u00f5es via e-mail para o m\u00e9dico<\/strong>. \u00c9 importante destacar que o app tamb\u00e9m \u00e9 adapt\u00e1vel<\/strong> a qualquer tipo de regime terap\u00eautico com o Factor VIII<\/strong>: profil\u00e1tico, ajudando a lembrar quando fazer a infus\u00e3o, e registrar o tratamento por demanda. Ainda permite recordar os epis\u00f3dios de sangramento e infus\u00e3o.<\/p>\n

Aplicativos gratuito, dispon\u00edvel para IOS<\/p>\n

3 – Siat Hemofilia<\/h4>\n

Este programa foi idealizado para que os portadores da hemofili<\/strong>a possam manter o controle de seu tratamento e de sua sa\u00fad<\/strong>e, al\u00e9m de promover uma permanente intera\u00e7\u00e3o com o seu m\u00e9dico<\/strong>. Ap\u00f3s instalar o aplicativo, o usu\u00e1rio dever\u00e1 definir o pr\u00e9-tratamento por parte do especialista.<\/p>\n

Fun\u00e7\u00f5es dispon\u00edveis:<\/strong> relato das infus\u00f5es de fator de forma r\u00e1pida e f\u00e1cil, contato com o seu m\u00e9dico atrav\u00e9s de bate-papo exclusivo, mensagens e chamadas, lembretes e dicas para tornar o processamento mais f\u00e1cil, arquivamento das suas atividades e acesso \u00e0s suas m\u00e9tricas e medi\u00e7\u00f5es a partir da plataforma web, al\u00e9m de gerar instantaneamente relat\u00f3rios<\/strong> de eventos e infus\u00f5es sob demanda com o seu m\u00e9dico.<\/p>\n

O m\u00e9dico especialista<\/strong> est\u00e1 habilitado a receber a profilaxia ou atrasos em eventos de informa\u00e7\u00e3o de seus pacientes em tempo real, al\u00e9m de ter a rastreabilidade detalhada do tratamento<\/strong> de cada um dos enfermos, podendo entrar em contato com eles a partir da aplica\u00e7\u00e3o atrav\u00e9s de chat ou mensagens.<\/p>\n

4 – MicroHealth Hemofilia<\/h4>\n

Software destinado \u00e0s pessoas com hemofilia<\/strong> ou outro dist\u00farbio de sangramento, cuja fun\u00e7\u00e3o \u00e9 ajud\u00e1-las no controle de sua condi\u00e7\u00e3o<\/strong>, possibilitando o compartilhamento das informa\u00e7\u00f5es<\/strong> com sua equipe m\u00e9dica e de cuidados<\/strong>.<\/p>\n

Ap\u00f3s baixar o aplicativo, o usu\u00e1rio escolher\u00e1 o seu tratamento da hemofilia, passando a receber lembretes personalizados<\/strong>. O app permite acompanhar as infus\u00f5es e sangramentos<\/strong>, realizando acompanhamento, com imagens e n\u00fameros de lote em qualquer lugar.<\/p>\n

Aplicativo gratuito, dispon\u00edvel para Android<\/a>.<\/p><\/p>\n","protected":false},"excerpt":{"rendered":"

Comemora-se hoje, 17 de abril, o ”Dia Internacional da Hemofilia”, data institu\u00edda para celebrar o nascimento de Frank Schnabel,…<\/p>\n","protected":false},"author":2,"featured_media":20099,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_kad_blocks_custom_css":"","_kad_blocks_head_custom_js":"","_kad_blocks_body_custom_js":"","_kad_blocks_footer_custom_js":"","_kadence_starter_templates_imported_post":false,"_kad_post_transparent":"","_kad_post_title":"","_kad_post_layout":"","_kad_post_sidebar_id":"","_kad_post_content_style":"","_kad_post_vertical_padding":"","_kad_post_feature":"","_kad_post_feature_position":"","_kad_post_header":false,"_kad_post_footer":false,"footnotes":""},"categories":[408,410],"tags":[],"class_list":["post-5494","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-aplicativos-para-medicos-e-pacientes","category-datas-comemorativas-da-saude"],"yoast_head":"\nDia Internacional da Hemofilia - Blog ProDoctor Software<\/title>\n<meta name=\"description\" content=\"Comemora-se hoje, 17 de abril, o Dia Internacional da Hemofilia. 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